Organizations:
Tourette Association of America
42-40 Bell Blvd., Suite 205
Bayside, NY 11361–2861
Telephone: 888-4-TOURET
E-mail: support@tourette.org
Web: tourette.org
Tourette Canada
5945 Airport Rd – Suite #195
Mississauga, Ontario
Canada L4V 1R9
Telephone: 1-800-361-3120
E-mail: admin@tourette.ca
Web: tourette.ca
Tourette Syndrome (UK) Association
The Meads Business Centre
19 Kingsmead
Farnborough, Hampshire GU14 7SR
Telephone: 0300 777 8427
Web: Tourettes Action.
For information and support in other countries, consult the U.S. Tourette Syndrome Association’s list of international contacts and the Canadian organization’s list of international contacts.
Books for Educators:
- Cohen B: Front of the Class: How Tourette Syndrome made me the teacher I never had. Vanderwyk & Burnham, 2005. This was also made into a Hallmark special and is also available on DVD.
- Connors, S: The Tourette Syndrome & OCD Checklist: A Practical Reference for Parents and Teachers. Jossey-Bass, 2011.
- Dornbush, MP, Pruitt, SK: Tigers, Too:Executive Functions/Speed of Processing/Memory- Impact on Academic, Behavioral, and Social Functioning of Students with ADHD, Tourette Syndrome and OCD. Parkaire Press, 2009.
- Packer, LE: Find a Way or Make a Way: Checklists for Accommodations for Students with ADHD, Executive Dysfunction, Mood Disorders, Tourette’s Syndrome, Obsessive-Compulsive Disorder, and Other Neurological Challenges. Parkaire Press, 2009.
- Packer LE, Pruitt SK: Challenging Kids, Challenged Teachers: Teaching Students with Tourette’s, Bipolar Disorder, Executive Dysfunction, OCD, ADHD, and More, Woodbine House, 2010.
- Tourette Syndrome Foundation of Canada: Understanding Tourette Syndrome: A Handbook for Educators.
The U.S. Tourette Association of America has a number of free resources available online to educators. The resources include explanatory material, tips for different educational issues, and materials for conducting staff development and peer awareness training.
Other Recent Books of Note for Healthcare Professionals:
- Kurlan R. (ed.) Handbook of Tourette’s Syndrome and Related Tic and Behavioral Disorders (Neurological Disease and Therapy). CRC Press, 2019.
- Martino, D, Leckman J (Eds). Tourette Syndrome, 2nd edition. Oxford University Press, 2022.
- McGuire JF, Murphy TK, et al. (eds.): The Clinician’s Guide to Treatment and Management of Youth with Tourette Syndrome and Tic Disorders. Academic Press, 2018.
Books and Videos for Children or Teens:
- Buehrens A: Adam and the Magic Marble. Hope Press, 1991.
- Buehrens A: Hi, I’m Adam: A Child’s Book About Tourette Syndrome. Hope Press, 1990.
- Buffolano S: Coping with Tourette Syndrome: A Workbook for Kids With Tic Disorders. Instant Help Books, 2008.
- Byalick M: Quit it! Delacorte Press, 2002.
- Hargrove A: I Tic. CreateSpace Independent Publishing Platform, 2017.
- Krueger T: Taking Tourette Syndrome to School. Jayjo Books, 2001.
- “I Have Tourette’s But Tourette’s Doesn’t Have Me” (HBO Special). See an excerpt from the award-winning documentary and request a copy from the Tourette Syndrome Association web site.
Books for Parents and Families:
- Frazer, A: Happily Ticked Off: A Tourette’s Mom-Moir. Armonia Publishing, 2015.
- Tourette Syndrome Foundation of Canada: Understanding Tourette Syndrome: A Handbook for Families. Ordering information available on their web site.
Some Free Handouts and Tools:*
- Dear Parent: A Letter to Parents of Children Newly Diagnosed with Tourette syndrome (Packer)
- Common Tics of Tourette Syndrome (Packer, 1995)
- The Animals Inside Me (from Packer and Pruitt, Challenging Kids, Challenged Teachers, 2010)
- Tic Reporting Inventory (from Packer and Pruitt, Challenging Kids, Challenged Teachers, 2010)
- Requesting School Accommodations for Your Child
- Need help organizing your school concerns about your child? See if this chart and handout helps you (Packer)
*Thanks to Woodbine House for giving us the digital rights to reproduce Challenging Kids, Challenged Teacher handouts for you.